S/V Myeloma - End of Cycle 4JJ
It's very difficult to write a blog when you don't do much! It's too cold and wet here to venture out much and we spend a lot of time indoors watching daytime television. When I was working I always dreamt of having time to read or to have a lie-in in the mornings and or take up a new hobby. Now that I can, it's not quite what I thought it would be like! Even on the boat, we were always busy doing chores or mending something or planning the next trip or just sitting and looking around, not to mention having to meet people all the time and drink beer and talk!
S/V Myeloma - End of Cycle 3Jane
Unbelievably another month has passed on S/V Myeloma. We had a pretty good Christmas with Andy well enough to drive us up to London on Christmas Day to spend the day with Barb, Dan and the grandchildren. He had been worried that he would be having one of the down days or that they would have streaming colds which would mean he wouldn't be able to go. We had a lovely meal with them and then had Boxing Day with my brother and family eating more fabulous food.
S/V Myeloma - End of Cycle 2Jane
S/V Matilda had a pretty uneventful trip down to the Canaries and is now resting in Las Palmas while Andy B pops home for Christmas.
S/V Matilda’s Gone a’RovingJane
I had a bitter-sweet trip to Cartagena this week to pack up our stuff on Matilda and hand her over to our friend, Andy. Unfortunately my Andy isn't allowed to fly at the moment so my brother very kindly came with me to help. We had two lovely days down there in the bright sunshine, 21 C with that blue, blue Mediterranean sky.
One Down, Five to GoJane
26/11/2014, Gosport, HANTS
I've been trying to think of a catchy title for these future blogs but nothing seems to be appropriate somehow! Last month Andy started his treatment for myeloma. The photo shows his month's supply of drugs he now takes. He has to have high doses of Dexamethasone, a steroid, weekly chemo drugs called Cyclophosphamide and, bizarrely, Thalidomide which is an immunomodulatory drug. Side effects include mood swings, nausea, vomiting, constipation, diarrhoea, headaches, insomnia, fatigue, stomach pain, indigestion, fluid retention, increased blood sugar, increased appetite, loss of appetite, muscle weakness etc, etc. To counter-act some of the above, he has Ondansatron, Metachlopramide, Allopurinol, Amitriptyline, Paracetamol, Movicol, Immodium, Tramadol. He will also start having monthly infusions of Bisphosphonate to strengthen his bones which the myeloma attacks. When he's done five or six 28-day cycles of this, he will be able to have an autologous stem cell transplant (where they harvest his own stem cells from the bone marrow) and after that, he should be in remission!! Sounds pretty simple doesn't it?!
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